Caring for a parent with dementia at home is a life-changing journey that requires patience, strength and a profound sense of commitment.
With the right approach and resources, dementia care at home can be managed effectively while maintaining the dignity and comfort of your loved ones.
The dementia care journey at home
Taking care of parents with dementia is a common process that children go through. Dementia brings with it not only cognitive decline but also emotional and physical challenges.
Caring for a parent with dementia at home is a commitment that involves adapting the following:
- Home environment
- Your schedule
- Your mindset
The impact of dementia on the individual
If your parents have dementia, one thing you’ll notice is it’s not only bewildering to your parents but also to those around them.
Dementia is a condition that can:
- Alter a person’s perception of reality
- Impair communication skills
- Affect behavior and emotions
As a caregiver, it helps to understand that the changes in your parent are a result of the disease. This way, you can manage your expectations and empathize with them.
Tips for caregivers communicating with parents with dementia
1.  Educate yourself.
Understanding the specific type of dementia your parent is dealing with can provide insight into what to expect and how to manage it. To educate yourself on the disease’s progression and how to provide effective dementia care at home, check out resources from:
- Local healthcare providers
- Dementia support organizations
- Online platforms
2.  Establish a structured routine.
Routine can be a source of comfort for those with dementia. Structuring the day can help reduce confusion and anxiety for your parent. To help them create a sense of stability, establish a regular time for:
- Meals
- Bathing
- Dressing
3.  Create a safe environment.
When caring for a parent with dementia at home, simple adjustments can be made, including:
- Installing grab bars in bathrooms
- Ensuring the home is well-lit
- Removing tripping hazards
- Installing locks on cabinets that contain dangerous items
4.  Set a positive mood for interaction.
Your attitude and body language communicate your feelings and thoughts more strongly than your words.
To help convey your message and show affection, emphasize the following:
- Facial expressions
- Tone of voice
- Physical touch
5.  Get the person’s attention.
Eliminate distractions and noise, such as the TV or radio, to ensure your parent can focus on the interaction. Make sure you have their attention before you start speaking.
6.  State your message clearly.
Use simple words and sentences.
When talking, see to it that you’re speaking:
- Slowly
- Distinctly
- In a reassuring tone
If they don’t understand the first time, use the same wording to repeat your message or instruction. Refrain from raising your voice louder than necessary.
7.  Ask simple and answerable questions.
When asking a question, be patient in waiting for your parent’s response, as it may take them longer to process the information.
Mind your words and consider these:
- Ask one question at a time
- Rephrase your question for a yes or no answer
- Avoid open-ended question
- Avoid giving too many choices
8.  Remember that you cannot be a perfect caregiver.
Recognize that there will be good days and bad days. It’s normal to feel frustrated, overwhelmed and even defeated at times. Caregiving isn’t easy so show yourself some grace. Accept that you’re doing your best and play the cards you’re dealt.
9.  Respond with affection and reassurance.
People with dementia often:
- Get confused with reality
- Feel anxious
- Feel unsure of themselves
- Recall things that never really occurred
Avoid trying to convince them they’re wrong. Stay focused on the emotions they’re demonstrating and respond with verbal and physical expressions of comfort, support and reassurance.
10. Engage in meaningful activities.
Find activities that your parent enjoys and adapt them to their current abilities. Meaningful activities can provide a sense of purpose and joy, whether it’s:
- Listening to music
- Going for a walk
- Working on puzzles
11.  Maintain your sense of humor.
Laughter can go a long way in dementia care at home. A sense of humor can help defuse tense situations and is beneficial for both you and your parent. Remember to laugh with your parent, not at them.
Key takeaway
Caring for a parent with dementia at home is an act of love and loyalty.
As the caregiving roles reverse, the need for love, respect and care remains constant. Be kind to yourself, seek support when needed and take pride in the commitment you’ve made to caring for your parent with dementia.
